Jimmy Carter long stay hospice dispels myths end-of-life care

Former President Jimmy Carter defies odds by being in hospice for 16 months, dispelling myths and highlighting the value of care.

Former President Jimmy Carter has been in hospice care for 16 months, defying the odds and shedding light on the complexities of end-of-life care. Despite entering hospice in February 2023 after discontinuing aggressive treatment for metastatic melanoma, Carter, who is set to turn 100 in October, has surpassed expectations by surviving with the disease for over 5 years. Dr. Joan Teno, an expert in geriatric care, describes Carter as an "outlier" in the hospice world, where only a small percentage of patients survive more than 15 months.

Hospice care typically focuses on individuals with a life expectancy of 6 months or less, emphasizing symptom management, pain relief, and quality of life. However, many Americans lack awareness of hospice care options and engage in advance care planning. Angela Novas, a senior medical officer at the Hospice Foundation of America, notes the confusion and misunderstanding surrounding hospice care, highlighting the need for education and awareness.

While most hospice patients pass away within the first six months, Carter has celebrated his 99th birthday, attended his wife's funeral, and continues to receive high-quality medical care at home. The multidisciplinary team of health professionals in hospice care provides physical, psychosocial, and spiritual support to patients with terminal illnesses. Services include medication for symptom control, medical equipment, and therapy to maintain strength and mobility.

Despite misconceptions about hospice care limiting nutrition and fluids, providers aim to enhance the quality of life for patients like Carter. Hospice patients are encouraged to enjoy their favorite meals and activities, reminiscing with family and friends, watching films, and listening to music. Hospice care allows patients to stay at home, surrounded by loved ones, in a comfortable and familiar environment.

Carter's decision to elect hospice care over futile treatment has highlighted the value of hospice and palliative care in our healthcare system. By outliving his initial prognosis and receiving hospice care for an extended period, Carter has challenged stereotypes and myths about hospice care, demonstrating that it is not just for individuals who are bedbound and actively dying.